A familiar account of what autism is like by Jo Worgan, she mentions some of the things in this thread:
Sometimes the Hulk phase can come in an instant but maybe there are signs you can detect before the Blind Rage kicks in. The below quote and site gives valuable information.
Sometimes the Hulk phase can be so bad that maybe institutionalization is necessary. Some families try to 'wing it' when their autistic child becomes an autistic adult either because they cannot afford to send their child away or they cannot bear the thought of doing that to one of their own. Sadly, the effects of such a choice can have devastating consequences as outlined in the following:
Name: V J
Comments: It is a difficult line to walk. On the one hand you don't want people to think that autistic people are genetic freaks who will never contribute anything to society and it might be better if they were disposed of, on the other you want to educate people on the fact that autism is a problem that you cannot cure, only disguise.
I, myself, am an Asperger Autistic and I will hold up my hand right now and say the only reason that I cope so well with the outside world is because of the training that my mother gave me. That include that there were always changes to routines involving other people. The table was always laid in a different pattern, the food dished in different combinations. If I started having a 'little moment' I was told to stop it, if I did not I got my knuckles rapped. It sounds cruel but it was what was necessary and because of it by the time I was eight Mother could take my sister and me out to a restaurant and know that there would never be a problem.
Because of that training I learnt that other people could not be controlled and that I should not try to. Therefore the only thing I could control was myself, so that is what I did. I have picked up the knife first and then the fork for so many years that I don't even realise that I am doing it any more.
However, my appearance of 'normalcy' is first and foremost an act. Even at the age of twenty eight I still have 'little moments', I have just become better at internalizing them and/or keeping them private. For instant, I missed the bus on the way to work this morning and I had to go home and have ten minutes where I sat in the kitchen on my own with my hands over my ears to get passed the instant reactive instinct to start screaming and sobbing. Then I was able to ask for a lift.
If I cannot have to time alone to reboot my brain then pain is my next medicine. I say 'excuse me', go out of the room and punch the nearest wall as hard as I can. It hurts like heck and I know that one of these days I am going to break a knuckle but it is all I can do to stop the screaming in my head, because if that screaming gets too load then I will start hitting other people.
Life with autism is never easy, you just become better at disguising it. Time and practise makes you better at everything.
VJ, thank you for sharing your personal story. It is very important for people to read things like this so they can understand or be aware of the struggles that Aspies as well as HF autistic people go through every day.
I always get the impression that even within the Autism community, people seem to believe that just because someone is high-functioning they do not have to deal with any issues and that they shouldn't
"Complain" Because they don't have it "Too bad".
Thank you so much again for sharing from personal experience.
This is exactly my sentiments about autism from the world's perspective. The light it up blue nonsense does not address the serious issues that surround autism. When someone light it up blue, toast and drink - I'm at home trying to calm my children with no relief or help.